Aegerion Pharmaceuticals 2018 EU Payment Disclosures

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UK

Payments to Patient Organisations 2018

Patient Organisation Project / Support Payments without VAT
EURORDIS, European Organisation for Rare Diseases Subscription to continue being a member of the European Organisation for Rare Diseases (EURORDIS) Round Tables of Companies 5,000 €
AILIP (Associazione Italiana Lipodistrofia) Establishment of AILIP as a legal identity in Italy; website implementation 25,000 €
AFLIP (Association Francaise des Lipodystrophies) Development and distribution of patient education materials 6,398 €
AELIP (Asociación Internacional de Familiares y Afectados de Lipodistrofias) Website development; patient education 28,000 €
AELIP (Asociación Internacional de Familiares y Afectados de Lipodistrofias) Sponsorship of the “VI Simposium de Lipodistrofias”  8,000 €
Naca Eulalia Pérez de Tudela Cánovas, President and Founder of AELIP Honoraria and Sponsorship - Presentation on June 6th, 2018, during the second EMEA Team meeting held in Berlin, Germany 1,355 €

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